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NEWS : LONG COVID RISE UP BECOMES A FEDERATION

As the pandemic enters its seventh year, four European Long COVID & COVID grassroots associations have officially announced the creation of ‘Long COVID Rise Up’, a new formal international federation based in Paris and composed at his launch of : Winslow Santé Publique, Long COVID Aragón, COVID Long Solidarité, and Col.lectiu d’Afectades i Afectats Persistents per la Covid-19.  The Federation will bring together patient groups, allies and whistleblowers to demand urgent research, prevention, and an end to political neglect and inaction

https://www.journal-officiel.gouv.fr/pages/associations-detail-annonce/?q.id=id:202600042170 

Read the full communication in one of the 3 official languages of the federation:

LONG COVID DECLARATION

🌍 Today, we, patient organizations and advocates living with Long COVID from all over the world, release a collective declaration.

5 years on, millions live with this chronic condition caused by SARS-CoV-2. We demand action, not denial.The erasure of long COVID is a public health failure. Failing to assess the full burden of Long COVID leaves millions behind.

Read it here:

« How can I sign? »

Advocates living with Long COVID, organizations and researchers who agree with the declaration’s principles: contact us by email to sign for fair representation, urgent action, research and prevention: lcriseup@proton.me

Manifesto

Demands and rights of people living with long COVID in Europe.

« Covid is not over.

Each new variant brings with it a wave of long COVID.

We are millions around the world – we exist. »

At the time of the Long Covid Awareness Day events, several organisations co-constructed a Manifesto.

11 associations, 5 countries, 7 languages :

Français
Catalán
Español
English
Vlaams
Português
Italiano

March 15th, 2025 Events